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Everything posted by FreshFluff
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411 on Copper Cactus Ranch east of Phoenix
+ FreshFluff replied to + Just Sayin's topic in The Lounge
Maybe someone had no luck renting out their place on Air B&B and tried this instead? -
”My team“ may be a reference to his lawyer(s), not to the tech guy and moderator.
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Fantastic work, @RadioRob and @Orin! I was a little worried when the site wouldn’t load. I like the new set of emojis, too.
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I’m a little confused by the discussion around changing the mission of this board. How would that look in practice? I’m imagining the current forum with a new name and an additional sub-forum called “Legalizing sex work and improving conditions for MtM sex workers.” How would this new sub-forum and mission provide legal protection for the more popular parts of the forum, e.g. the Deli? Is the idea to attract the interest of HRC and its legal resources?
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You make a good point about George VI’s family living longer. As for Margaret, sheseemed like the type who liked unavailable men. IMO, if it hadn’t been Townsend, it would have been either another married guy or a flamboyant bad boy like Armstrong-Jones. It’s hard for me to picture her living in domestic bliss with some aristocrat.
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Do you really think it was the war that caised G VI’s death vs advanced lung cancer? As for suitors, could the Duke really hold a candle to the dashing alpha male Townsend? The crown siggedts that Margaret pursued Townsend pretty aggressively.
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Unfortunately, I was a bit too enthusiastic on the home PT exercises and am now limping. Hope I can find a way to manage that! As for my hematologist, a well known doctor in another specialty referred me to him a few years ago. I found him knowledgeable, experienced, and calm. I feel that his order was consistent with the newer diagnostic algorithms. Other patients may prefer doctors who are slower to test. While I waited for my doctor to call, I watched plastic surgeon Dr Miami do a live boob job consult on Instagram. He does penisplasties too. Subscribe to his Onlyfans for 4.99 a month.
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Negative. That’s not an absolute rule out, but he said none of the non-genetic tests gave reason for concern either After all, he said the basis for this work up was soft in the first place. If platelet count increases, then I should come back to him, but there’s no reason to expect that. Thanks for all the help, everyone.
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I don’t know about the grandfather and great, but George VI was a heavy smoker who died of lung cancer. His mother, Mary of Teck, died at 87.
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I appreciate the reassurance, @purplekow. This was precisely what was on the lab order. JAK2/CALR/MPL, BCR/ABL1, SED, C-reactive protein, Rheum arthritis factor. The latter was added because my ANA tests have turned out mixed pos/neg in the past. As I said, despite somad bad news over the past few years, I was stunned that this testing cascade ended up with a zebra like MPN. You are right that I have gotten everything possible out of worrying. As many have recommended, I'll deal with it when it comes. I'm trying to walk as much as possible. The knee has improved a great deal.
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Wish I had been there. Would have been more productive than spending the weekend worrying. Unfortunately, I received the first shot only a week ago.
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@latbear4blk,@sync, @FrankR, @AntonGraza,@Lucky, @BSR : I appreciate the outpouring of support. I really hesitated to post this when I have no idea what's going on, but this rare disorder sounded so scary. A few years ago, I thought I would be fine for a long time. Since then, I've had so many early onset issues (BCC, knee, neck), that almost nothing seems unbelievable now. @Unicorn and @sniper Based on what the heme said, the mutation for this particular issue are somatic/acquired rather than germline. The diagnostic algorithm he described presumes you have the disorder if any of the mutations are found. That said, I realized after I posted this that one of the CALR mutation is a deletion. They list it at "-" or "TTAC" or whatever the sequence is. So it's unclear from the 23 and Me raw data whether , say “TTAC/TTAC” means “TTAC deletion“ or “noemail sequence with TTAC present.” mutation/deletion. As many of you have recommended, I'm just going to wait for the real lab to get back to me. @azdr0710 Thanks for that, truly. I'll go to that railroad platform in El Paso with you any day!
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I very much hope you’re right, Unicorn, and that the hematologist is ovely cautious. What drove all this was the low bone marrow finding on the lumbar MRI; I would not have given a second thought to the lab results. The hematologist had treated me previously for anemia, and I went back to him after the other two told me they didn’t see a lot of blood cancers. I did my best to avoid spooking him; I briefly told him the history and asked what he thought. He said he sees the low bone marrow finding often and usually doesn’t work it up. But because my platelets have been on the high end for a while and anemia has resolved, he wanted to rule out MPNs and rheumatoid arthritis. I thought for sure he‘d say it was nothIng amd that would be the end of it. As for the knee pain, my PT thinks it’s likely related to the muscular asymmetries that caused the PF syndrome . There is nothing to suggest sciatica here. TBH, I was limping for a couple of weeks,, but the pain improved. If I’m scared, it’s because I’ve been on the wrong side of the statistics several times already. My seen-it-all pain doctor was stunned to see moderate/severe patellofemoral syndrome on someone my age and weight. When I had horrible arm and scapila pain, my GP was stunned that a presumed muscle spasm turned out to be severe multi-levels cervical spine stenosis. I still remember the confusion their voices (both were over the phone) as they told me. I have managed to beat the c-spine issue without surgery so far and hope I can continue that. Again, I’m grateful for the support.
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Yes, everyone seems mystified by this. That’s why the ortho thought it might be sciatica, but that was ruled out. I thought the same thing at first. Platelets of 403+bone marrow finding= Myeloproliferstive neoplasm? It seemed unlikely, particularly when I was dehydrated and the phlebotomist struggled to draw the blood. I figured that would inflate the count. But then I looked at the lab order and located the CALR mutation in my raw data. I very much hope this is wrong.
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This is so crazy, but it’s easier to explain it in bullet format. Long story short, I’m suspected of having a rare blood disorder. -In December for a run after not running for a while. -Ouch, quads and hamstrings are sore for a whole. Pain at the back of the left knee persists. -Knee MRI ordered. Shows moderate to several patellofemoral syndrome, unusual for my age and size. I start PT -I am referred to ortho. but I keep asking why the pain is mostly back of the knee -One ortho says it sounds like sciatica. Lumbar spine MRI ordered -No real problems on the lumbar spine...except that the bone marrow signal is low. -Labs are ordered, including a smear. All negative except for platelets, which are 2 points over the top of the normal range. -Referred to two general oncoligists who dismiss it. I hoped they were right, but I wanted to make sure. -I set a phone appt with my old hematologist across the country. He says the comination of this MRI finding and w/no iron deficiency means a rare blood disorder (caused by acquired gene mutations) needs to be ruled out. -He orders a few genetic and other lab tests for this rare disorder. -I can’t help but go into my 23 and Me raw data. Took me a while to sort it out, but looks like i have one of the mutations and thus the rare blood disorder. Assuming the 23 and me lab didn’t screw this up, looks like I have this rare blood disorder, which can cause clots and sometimes eventually morphs into leukemia. I’m hoping 23 and Me is wrong, but I have a bad feeling about this. I’m pretty upset. You all have been very supportive so I thought I’d talk about this here. Edit: I really appreciate the support. I don’t want to present this as something it’s not. Depending on what this is, it may not affect lifespan. But it certainly puts me at higher risk.
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The 1985 TWA hijacking. I remember coming back from swim temy arm watching the latest updates. The Loma Prieta earthquake The TV movie The Day After. Erich Honecker amd his gold bathroom fixtures
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Shhh. Stop talking for a moment as the image enters my mind. I’m seeing a physician. Maybe an internist or cardiologist. You trained under a mentor who was rather clinically conservactive and thorough. How am I doing?
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I went to one in my early twenties after seeing a $5 for one question sign at the door. She told me that neither of my current dating relationships would work out. She then offered two more questions for another $5. I passed.
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Me over the last 2 weeks.
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The Tiffany Ingram story may have put a damper on that. http://www.theciviljusticeblog.com/2015/07/anesthesiologist-disparages-patient-and-she-ends-up-paying-for-it/
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Southwest has made a Statement about the Incident, which they are very Sorry about. ״Our corporate Culture is built on a tenet of treating others with concern and dignity and the comments are inconsistent with the professional behavior and overall respect that we require from our Employees, This situation was an isolated incident involving a single Employee and not representative of the nearly 60,000 hardworking, respectful People of Southwest Airlines."
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I‘m so sorry. I never had the chance to meet him, but he worked hard to run this board, and my life is better for it. RIP.
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