@FreshFluff, thanks so much for checking in to see how things are going. Due to Covid-19 virus, my last trip was in early March. No problems at all went fine except shortness of breath. The next trip will be mid-September. I really don’t these medical problems are related to air travel.
For almost 2 years now I’ve been dealing with these symptoms. My PCP, neurologist, and oncologist can tell me what it is not but not what it is. So far, they have ruled out diabetes, MS, MD (my sister died of IBM which is in the MD family), scleroderma, and a host of other diseases.
A year ago, I was diagnosed with smoldering multiple myeloma (SMM). This is a form of blood cancer that attacks the platelets. I found a FB group for people with SMM and it’s been a very helpful with a wealth of info. The format is very similar to this site.
About 6 months ago a woman in the Netherlands posted her problems with leg weakness / soreness, extreme fatigue, and loss of balance. She said her Dr told her it was unrelated to SMM (same response I got). I saw her message about 4 hours after her initial post. She had over 100 responses from all over the world during those 4 hours. All but about 6 people had similar symptoms.
The other interesting info was that the problems seem to come and go without warning. Mine has only improved by 25% and I’m currently in one of my worst bad periods. Very limited mobility and I get winded / sweating just taking out the garbage (less than 50 years away).